Gracie's final post.
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A blog dedicated to sharing the joys and challenges of being the mum to a large family.
THE LORD JESUS CALLED OUR AMAZING GRACIE HOME THIS MORNING AT 8:08 Am. After a 7 month fight to remain with mom and dad, brother and family, Our Lord said,"Gracie you come home to me now"
Gracie battled mightily throughout the night. At 3:30 A.M the family gathered and began a wonderful time of each one holding Gracie and sharing her sweet kisses and loving her with all that we have.
Grandpa Brown decided to go last as he got to spend three precious hours holding Gracie on Monday before the surgery. Everyone had a glorious time. GrandPa Bill Lockyer had her snuggled sweetly in his arms shortly after 8:00.
Gracie had been unresponsive for the two hours previous and the Doctors and nurses had told us that she may have already passed and was being kept alive by the medicines and machines.
However the wonderful Savior knew different and Gracie opened her eyes wide, turned her head, gave two deep breaths and left with the Lord to heaven. Heaven was in the room.
Thank you all so much! We love you. Arrangements will be posted soon.
Grandpa Brown for Todd and Amanda
From Todd and Amanda:
The last few hours have been a whirlwind!! But, please do not be shocked and saddened--we are rejoicing. Gracie has been given the victory! We were fighting to keep her here and she fought with us each minute of each day without looking back....but when the Lord Jesus called her name, she obeyed and everlasting peace and comfort began for her--to never end!!


Dear praying friends,
The asst to the Dr. just came out and told us that Gracie is off the heart lung bypass machine. Though this is what we were praying for she did say that we are by no means out of the woods yet. Currently they are trying to get her bleeding to stop before closing her chest. Also her oxygen saturations in her body and also in her brain are low and they are trying to get them up to an acceptable stable place. Please pray very heart about the next few hours and the next few day's. Dr. Jaggers will be out to talk to us in about 45 minutes. The nurse made it clear that Gracie is still fighting for her life and has put up a great fight already today. She described it as a plane trying to stay in the air while clipping the treetops. PRAY PRAY PRAY . Will update with new information as soon as possible. Grandpa Jim for Todd and Amanda.
Adding my prayers and begging for yours!
Mum2twelve/Christi

Hello everyone.
Thank you for your prayers today. We had a meeting today at Duke with our family and with doctors, social work, nursing and ethics. It was a wonderful opportunity to have everyone in a room and to come together for a plan of care for Gracie. Todd and I feel that the meeting was conducted with class and we felt that our faith, our beliefs and our concerns were able to be listened to and accepted.
The doctors presented us with the following conclusion:
Without any action, Gracie is going to die. The hopes of every doctor included in Gracie’s care was for her to make progress, feed, grow and get better before the next needed surgery was done.
But, this has not been the case with Gracie. She has “stayed the same” in her progression and is not seeming to improve in her overall health picture.
So, the doctors feel that since we want every attempt made to try and help Gracie to live--they feel it is time to move forward and take her into surgery for an attempted Glenn procedure on next THURSDAY, OCTOBER 2. THERE IS A 10% CHANCE THAT SHE WILL SURVIVE THIS SURGERY. This does not mean that she would die on the operating table only, but the change could cause her body to shut down. But, the doctors said that if there was no chance at all that Gracie would survive he would not send her to the operation. WHAT IS 10% TO GOD??????
So, the only way that this surgery will not take place is if Gracie makes a dramatic improvement in the next week in health so that we can buy more “feed/grow” time. Or, if Gracie looks very sick on surgery day--they will not go forward. God could also call her home or He could return before this day, also!
So, please begin right this moment for God to perform a miracle and let Gracie’s body to come through surgery and accept the new flow of blood in her body. We are praying that He get the glory for bringing her through. Doctors even admitted that if Gracie comes through this that it would be a miracle--hence, God’s doing.
Please pray for Todd and I and the family for this week--as we know that this may be our last week with Gracie.
But, we are going to continue to trust in the God who sustained our Gracie two weeks ago today for a purpose. We believe He can bring her through this next mountain that she has to cross.
So, we have 8 days to pray hard and believe that He is able.
IF YOU HAVE A CHURCH SERVICE TONIGHT, PLEASE LIFT THIS PRAYER REQUEST UP TO ALL YOU CAN!!
Thank you,
Todd and Amanda
My brothers and sisters in Christ;
I sent out an email to many people today begging for prayers for LIFE. This is a real life and death situation.
As many of you know I have been following Gracie's care almost since her birth as my next door neighbour knows the family to whom Gracie was born. Two weeks ago, I watched and prayed over the days when almost all support was pulled as it really did seem that Gracie was dying. After most, if not all, support was removed, Gracie did a miraculous turn. It was incredible. And now that she is looking better than she ever has - the ethics committee wants her "unplugged". Satan can not stand the glory that is being given to God for every precious moment that Gracie breaths and improves.
This family's Christian faith is strong and we must support them in prayer as they pray for LIFE. I can not begin to imagine what it would be like to be in their place. But the way the political winds are blowing - many of us are going to face this situation and possibly sooner than we could ever imagine. We need to pray that this battle is won in GOD'S favour!
I have included below the two most recent journal entries from Gracie's CaringBridge web page so that you may read for yourself what is happening. These entries have been written by Gracie's parents, Tod and Amanda.
Please share this everyone that you think will care enough to pray that GOD'S will prevails.
Journal Entry from MONDAY, SEPTEMBER 22, 2008 09:08 PM, CDT
My brothers and sisters in the Lord Jesus,
Todd and I are calling out to you tonight to bind together with us in prayer for God’s deliverance, guidance and power.
Gracie looks beautiful and strong today. She has breathed the calmest she has in days, even though she continued to run a fever on and off. But she looks like a fighter and she has been in mommy’s arms all afternoon.
But, there are some very influential people at this hospital who have NO FAITH. They do not believe in God. They only look at scientific evidence. THEY BELIEVE THAT GRACIE IS DYING AND THAT TODD AND I ARE TRYING TO “MAINTAIN” HER LIFE LONGER THAN WE SHOULD.
HOW DO WE KNOW THIS?
Because TODAY they sent a representative for Ethics/Humanity in to speak with us. He told us that some doctors and nurses and others are of the opinion that Gracie is dying and we are prolonging the inevitable.
I’VE SEEN WHAT GRACIE LOOKS LIKE WHEN SHE IS DYING….SHE DID NOT LOOK LIKE THAT TODAY!
So, we feel this is a BATTLE FOR LIFE!!!!
OVER THE NEXT 48 HOURS, MUCH DISCUSSION IS GOING TO BE MADE ABOUT GRACIE AMONG DOCTORS. THE GOAL IS TO COME UP WITH A PLAN FOR HER CARE.
TODD AND I HAVE MADE IT VERY VERY CLEAR THAT WE WANT GRACIE TO HAVE EVERY OPPORTUNITY TO LIVE…AND AS LONG AS SHE IS ALIVE…WE WANT TO MOVE FORWARD.
THANK YOU SO MUCH FOR YOUR ENCOURAGING NOTES TO US! PLEASE PRAY HARD ABOUT A TENTATIVE MEETING TOMORROW AT 12:30 p.m. TOMORROW WITH MANY DOCTORS!!
THE MAIN TOPIC OF THE MEETING IS TO NAIL DOWN A COMMITMENT THAT IF GOD KEEPS GRACIE HERE UNTIL THE SHUNT IN HER HEART BEGINS TO FAIL, THAT THE DOCTORS WILL GIVE HER THE NEXT OPTION OF SURGERY. THIS IS AN OPTION THAT IS AVAILABLE….EVEN THOUGH IT IS HIGH RISK AND TODD AND I UNDERSTAND THAT SHE MAY NOT SURVIVE THE SURGERY.
Here is our reasoning….Imagine that your loved one is in a severe car accident and is rushed to the emergency room. The doctor comes out and says, “(Your name), your loved one is very critical and is dying. We must do an emergency surgery. The chances of your loved one coming through surgery are very low. But, if you choose to not do the surgery, it is only a matter of time.”
So, there we are. If we do nothing, Gracie will die at some point. If she has a very risky operation when her shunt begins to fail, there is hope. God is able to take over here and can bring her through this surgery if it is His will. It is also His right to take her home with Him before she has to go through another operation. Todd and I understand that it is in His hands.
But, we are in the ER--saying--do everything you can do. The doctors have said there is more they can do; it is just very risky! They are saying that maybe we shouldn’t put her through this. Well, if Gracie dies fighting….it will be no difference from how she’s lived every moment of her life. But we’re going to try every means possible!
Also, let me make this clear to all. Gracie is rather stable at this point. SHE HAS LIVED 19 DAYS WITHOUT A VENTILATOR AND SHE IS ON LITTLE HEART MEDICATION. SHE IS ON NO OTHER LIFE SUSTAINING MEDS OR EQUIPMENT AT THIS TIME.
SO, IF I WERE TO GO RIGHT NOW AND TAKE HER OFF THE VENT MYSELF…SHE WOULD LIVE FOR WHO KNOWS HOW LONG! IT WOULD NOT BE A FAST PASSING AWAY MOMENT IN MINUTES--MORE A SLOW AND SUFFERING APPROACH AS HER BODY WEAKENS OVER A FEW WEEKS. THAT IS WHY WE ARE SO ADAMANT ABOUT THIS.
Of course, that’s how Gracie looks today. She is breathing a fast and her gases have looked worse than better today. We are praying that she starts looking better and not worse. So please pray about this also. We know you will and we love all you for loving and praying for Little Gracie.
Todd and Amanda

"For me prayer is a surge of the heart, it is a simple look towards Heaven, it is a cry of recognition and of love, embracing both trial and joy."
... Saint Therese of Lisieux
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