My brothers and sisters in Christ;
I sent out an email to many people today begging for prayers for LIFE. This is a real life and death situation.
As many of you know I have been following Gracie's care almost since her birth as my next door neighbour knows the family to whom Gracie was born. Two weeks ago, I watched and prayed over the days when almost all support was pulled as it really did seem that Gracie was dying. After most, if not all, support was removed, Gracie did a miraculous turn. It was incredible. And now that she is looking better than she ever has - the ethics committee wants her "unplugged". Satan can not stand the glory that is being given to God for every precious moment that Gracie breaths and improves.
This family's Christian faith is strong and we must support them in prayer as they pray for LIFE. I can not begin to imagine what it would be like to be in their place. But the way the political winds are blowing - many of us are going to face this situation and possibly sooner than we could ever imagine. We need to pray that this battle is won in GOD'S favour!
I have included below the two most recent journal entries from Gracie's CaringBridge web page so that you may read for yourself what is happening. These entries have been written by Gracie's parents, Tod and Amanda.
Please share this everyone that you think will care enough to pray that GOD'S will prevails.
Journal Entry from MONDAY, SEPTEMBER 22, 2008 09:08 PM, CDT
My brothers and sisters in the Lord Jesus,
Todd and I are calling out to you tonight to bind together with us in prayer for God’s deliverance, guidance and power.
Gracie looks beautiful and strong today. She has breathed the calmest she has in days, even though she continued to run a fever on and off. But she looks like a fighter and she has been in mommy’s arms all afternoon.
But, there are some very influential people at this hospital who have NO FAITH. They do not believe in God. They only look at scientific evidence. THEY BELIEVE THAT GRACIE IS DYING AND THAT TODD AND I ARE TRYING TO “MAINTAIN” HER LIFE LONGER THAN WE SHOULD.
HOW DO WE KNOW THIS?
Because TODAY they sent a representative for Ethics/Humanity in to speak with us. He told us that some doctors and nurses and others are of the opinion that Gracie is dying and we are prolonging the inevitable.
I’VE SEEN WHAT GRACIE LOOKS LIKE WHEN SHE IS DYING….SHE DID NOT LOOK LIKE THAT TODAY!
So, we feel this is a BATTLE FOR LIFE!!!!
OVER THE NEXT 48 HOURS, MUCH DISCUSSION IS GOING TO BE MADE ABOUT GRACIE AMONG DOCTORS. THE GOAL IS TO COME UP WITH A PLAN FOR HER CARE.
TODD AND I HAVE MADE IT VERY VERY CLEAR THAT WE WANT GRACIE TO HAVE EVERY OPPORTUNITY TO LIVE…AND AS LONG AS SHE IS ALIVE…WE WANT TO MOVE FORWARD.
Journal Entry from TUESDAY, SEPTEMBER 23, 2008 08:09 PM, CDT
THANK YOU SO MUCH FOR YOUR ENCOURAGING NOTES TO US! PLEASE PRAY HARD ABOUT A TENTATIVE MEETING TOMORROW AT 12:30 p.m. TOMORROW WITH MANY DOCTORS!!
THE MAIN TOPIC OF THE MEETING IS TO NAIL DOWN A COMMITMENT THAT IF GOD KEEPS GRACIE HERE UNTIL THE SHUNT IN HER HEART BEGINS TO FAIL, THAT THE DOCTORS WILL GIVE HER THE NEXT OPTION OF SURGERY. THIS IS AN OPTION THAT IS AVAILABLE….EVEN THOUGH IT IS HIGH RISK AND TODD AND I UNDERSTAND THAT SHE MAY NOT SURVIVE THE SURGERY.
Here is our reasoning….Imagine that your loved one is in a severe car accident and is rushed to the emergency room. The doctor comes out and says, “(Your name), your loved one is very critical and is dying. We must do an emergency surgery. The chances of your loved one coming through surgery are very low. But, if you choose to not do the surgery, it is only a matter of time.”
So, there we are. If we do nothing, Gracie will die at some point. If she has a very risky operation when her shunt begins to fail, there is hope. God is able to take over here and can bring her through this surgery if it is His will. It is also His right to take her home with Him before she has to go through another operation. Todd and I understand that it is in His hands.
But, we are in the ER--saying--do everything you can do. The doctors have said there is more they can do; it is just very risky! They are saying that maybe we shouldn’t put her through this. Well, if Gracie dies fighting….it will be no difference from how she’s lived every moment of her life. But we’re going to try every means possible!
Also, let me make this clear to all. Gracie is rather stable at this point. SHE HAS LIVED 19 DAYS WITHOUT A VENTILATOR AND SHE IS ON LITTLE HEART MEDICATION. SHE IS ON NO OTHER LIFE SUSTAINING MEDS OR EQUIPMENT AT THIS TIME.
SO, IF I WERE TO GO RIGHT NOW AND TAKE HER OFF THE VENT MYSELF…SHE WOULD LIVE FOR WHO KNOWS HOW LONG! IT WOULD NOT BE A FAST PASSING AWAY MOMENT IN MINUTES--MORE A SLOW AND SUFFERING APPROACH AS HER BODY WEAKENS OVER A FEW WEEKS. THAT IS WHY WE ARE SO ADAMANT ABOUT THIS.
Of course, that’s how Gracie looks today. She is breathing a fast and her gases have looked worse than better today. We are praying that she starts looking better and not worse. So please pray about this also. We know you will and we love all you for loving and praying for Little Gracie.
Todd and Amanda